All of these are important points about living with MS and I can associate with most of them. Your voice and those of others who share our MS lives need to be heard by family, friends, employers and - perhaps most of all - our healthcare providers. Thanks for sharing yours and for the shout-out you've given to The MS Toolbox.
You’re welcome Ed, and thank you. Very good point about healthcare providers hearing our stories. I’m not too sure how easy it is to reach them though.
This is lovely, thank you. And thanks for the shout out! I’m remembering my own conversations, including the one where I had to tell my mother that I was not able to be the person to help her process my diagnosis. That was fun!
Thank you Jane. Virtually meeting you has been an absolute highlight on my time on Substack. I am very humbled to be included in your list - and can assure you that you hold such a place for me too. s
Thank you for including me on your list, Jane! I can relate to #5. Always fun to be asked, "What happened to you?" At which point I try to answer in the most awkward way possible.
Jane, it's been so wonderful connecting with you and learning about your story. I always look forward to reading your pieces and I can't wait to learn more. Thank you!
So happy you’re here sharing your story! Even though I have a different disability, I could relate to a lot of what you said here (especially the part about all the ignorant and intrusive things people say and ask when they see you using a mobility aid). Thank you so much for the shoutout too! ❤️
All of these are important points about living with MS and I can associate with most of them. Your voice and those of others who share our MS lives need to be heard by family, friends, employers and - perhaps most of all - our healthcare providers. Thanks for sharing yours and for the shout-out you've given to The MS Toolbox.
You’re welcome Ed, and thank you. Very good point about healthcare providers hearing our stories. I’m not too sure how easy it is to reach them though.
This is lovely, thank you. And thanks for the shout out! I’m remembering my own conversations, including the one where I had to tell my mother that I was not able to be the person to help her process my diagnosis. That was fun!
Oh god that sounds like a tough one, and not easy to forget 😖
True fact.
Thank you Jane. Virtually meeting you has been an absolute highlight on my time on Substack. I am very humbled to be included in your list - and can assure you that you hold such a place for me too. s
Me too Eliza, I love sharing exchanges with you, and your thoughtful take on things 💓
Thank you for including me on your list, Jane! I can relate to #5. Always fun to be asked, "What happened to you?" At which point I try to answer in the most awkward way possible.
That number 5! Think it will always be with us, but it’s good to develop different ways of dealing with it as time passes. I like yours! 🙏
Jane, it's been so wonderful connecting with you and learning about your story. I always look forward to reading your pieces and I can't wait to learn more. Thank you!
Oh thank you Chris, and me too, I feel the same about yours 😊
So happy you’re here sharing your story! Even though I have a different disability, I could relate to a lot of what you said here (especially the part about all the ignorant and intrusive things people say and ask when they see you using a mobility aid). Thank you so much for the shoutout too! ❤️
You’re welcome Jackie, I’m so glad you’re here too 😊