📚 My little library of MS related resources
🙋♀️ Blogs and social 🙋🏽♂️
Shift MS
A social network and community connecting people with MS worldwide.
Tripping On Air
Ardra Shephard’s award-winning MS blog inspired me to get started with mine. She also co-hosts a brilliant monthly podcast of the same name.
What a MS
Fascinating look at life with a chronic illness whilst taking part in medical research, from Eliza Metcalfe. Some really great non-MS related recommendations too.
Wheelchair Kamikaze
Extensive blog archive from Marc Stecker. Beautiful and insightful writing on living with progressive MS.
MS Confidential
A webcast providing a safe space for personal and informal discussions for people living with multiple sclerosis. Three panelists living with various stages of MS are joined by a dynamic guest each month, disclosing some of their innermost frustrations and challenges.
MeSsy Podcast
Even celebs get MS. Christina Applegate and Jamie-Lynn Sigler share raw and relatable conversations about their diagnoses. There’s some excellent swearing too.
📮 Newsletters 📰
FUMS 6-Pack Newsletter
FUMS founder Kathy Reagan Young curates a super informative and chatty weekly round up of the “Top six most interesting MS related topics this week!” Research updates, and everything else. There’s a podcast and a blog too.
MS News Today
Get the latest MS news, patient views, and caregiver perspectives from one of the largest MS communities online.
🚀 Mobility aids 👩🏼🦽
The Alinker walking bike
A non-motorized walking-bike without pedals. The company facilitates crowd-funding campaigns if you need support to help you get an Alinker. Available across the globe, international distribution details here.
Neowalk walking sticks
Cool, stylish and innovative walking sticks in a range of colours and designs. UK based but ships all over the world.
byACRE rollators
Beautiful, modern rollators, Scandinavian design. Available globally.
👩🏾⚕️ Clinicians 👨⚕️
Dr Gretchen Hawley - The MSing Link
Physical Therapist and MS specialist providing an online MS-specific exercise programme based on the concept of Neuroplasticity. Also lots of free content on YouTube and a great podcast.
Prof Gavin Giovannoni - MS Selfie
Neurologist working in the UK National Health Service (NHS). He produces the MS Selfie a Substack newsletter and microsite offering free content supporting patients to self-manage their MS.
Aaron Boster MD - The Boster Center for MS
Neurologist and founder of the Boster Center for MS in the US, Dr Aaron Boster offers short educational videos on YouTube on all aspects of MS.
Dr Mitzi Joi Williams “The Nerdy Neurologist”
A regular Instagram presence, Neurologist Dr Mitzi Joi Williams is also the host of the Brain Chat podcast. Each episode features a special guest and covers all aspects of the brain, with a focus on MS.
⭐️ I don’t receive any financial support from any companies mentioned, I’m listing them because their products are useful to me.
Please feel free to share details of any tools or resources you use that help you manage or deal with MS, I’d love to know. ⭐️
updated Sep 30, 2024.